Why why WHY are doctors even still doing this procedure in terms of removing ameloblastomas? Isnt a doctor's hippocratic oath to "first do no harm"? This is the easy way out...its not a matter of IF your tumor will return, but when. And, the second time around, will it still be the non-malignant variety or will you be being told you have cancer and that you are going to die, not just have to have part of your jaw and teeth removed? Why chance it?
I just dont understand this at all. I get so angry, because when I had my first ameloblastoma back in high school (it was 1998 and I was a junior) the oral surgeon then didnt say anything about what this was but just scooped it out and sent me home, with no "by the way, this WILL return so be prepared" he just said to "keep an eye on it." I was young and naive, my parents had no idea what this thing was and we all just thought I had dodged a bullet...now that I know so much more I feel angry that I wasnt informed enough about this thing to really make sure I got routine CT scans and health care before it returned with so much vengeance that I lost as much of my lower jaw and teeth as I did. My life wont ever be the same again. To do this to people who have no idea what they are up against is poor medicine, in my opinion.
I have been feeling a little bitter lately...I both loathe and love the ameloblastoma group on yahoo (sorry guys) because every time I open my email I relive what I have been going through the past almost 4 years now. The old fears return every time I read someone's message about finding out they have an amelo.
I am sorry this is not an upbeat post at all after it has been so long, too. Just under a lot of stress from the move and all and the gloomy rain and clouds. Hopefully it passes soon and my next update will be more cheerful. I see the doctors again on April 20th, will update then.
5 comments:
There is not a day goes by that I think about the tumor coming back. Its hard to be upbeat with amelo.
I had a reoccurance amelo, thus when I read this post I understand how you feel :| hope you stay sunny! and blog!
I'm sorry you feel that way. I just got in contact because I just found out about the ameloblastoma and it was comforting to find out another person's point of view rather than just all the scholarly articles out there. I am surprised that others with this rare condition would respond in such a way when someone tries to reach out. I am an educated woman and I'm aware of what the implications are.
Nevertheless I wish you, and others, all the best with everything...
Elaine, please know it is the drs who do this that make me upset, NOT the patients who choose to go this route! my biggest concern is with recurrence, as I wouldnt want anyone to have to got through what I have gone through ever ever ever. I am so sorry if I offended you, it wasnt my intent! Take care.
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